autism, children, Family, parenting, Writing

What They Don’t Tell you About COVID, a Poem for my Son

What do you do when your child becomes

something to remain behind the caution

tape for longer than the time the doctor

says he needs to be? What happens when

instead of being in a contaminated room

with doctors and nurses in hazmat suits

the walls build up around you and your child?

It’s like we travel back in time, and ET

is real. Steven Spielberg didn’t just

dream up a movie script. The specialists

walk through tunnels made like an old

vacuum hose. The one he loves stays

only as long as life beats in the heart

that experts see as only a body part.

But there isn’t any “E.T. go home.”

There’s only the walls around us, and

emails go out that your child’s been

asked not to return to camp for longer

than the doctor recommends.

Only no one had called you and told

you because after all your son

has only become another number,

a statistic on graph rising up, up, up,

and the heart is only something that

pumps. “E.T. go home,” they say.

Do you know my son is the reason

my heart still beats? There’s no

outer space to which we escape, and

the rain drips on the windows of my

daughter’s room. When I read words

that are never spoken to me after I’ve

battled nightmares all night and seen

my baby, over and over, die; I think of

how I’ll tell my son, “You can’t go back

to camp …” even after the doctor said

you could because other parents may

pull out because you’re the one who

got sick, the program may lose money

because you’re the one who got sick,

and we don’t matter anymore because

you got sick. I’d never say those things,

nor blame my son, but I know the reasons

why. He says to me, “Maybe the

COVID-19 will take my autism away.”

Then I really don’t know what to

tell my son because he’s already

dealt with so much from the day

his sister’s soul left the Earth.

Is the heart only a body part,

some beating membrane, or

something more tested to see

how much more it will take?

By Rebecca T. Dickinson

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